In memory of Daniel De Gale 1987 to 2008 aged just 21
His childhood cancer battle inspired bone marrow donation among Britain’s ethnic minorities
Daniel De Gale, who died two years ago on 8 October 2008 aged 21, was a former leukaemia patient who helped promote much-needed bone marrow donations from the black community.
The severe shortage of black donors when Daniel was diagnosed with the cancer at the age of six inspired his parents - Beverley De Gale and Orin Lewis - to found the African Caribbean Leukaemia Trust with the aim of increasing the number of people from ethnic minorities on the UK Bone Marrow Register.
Daniel David De Gale (14 March 1987 – 8 October 2008) inspired a major push to promote awareness of Leukaemia in the United Kingdom's black community when, as a child, his mother and stepfather launched a search for suitable bone marrow donors and a charity.more
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The charity was successful in recruiting donors from the police force, fire brigade and at universities and colleges. Volunteers worked tirelessly to raise awareness of the need for donors and staged recruitment registration clinics across the UK, focussing on towns and cities with a large black population. They also supported families suffering because of leukaemia.
They were helped during the 1990s by celebrities such as black footballers John Barnes, Ian Wright and John Fashanu, pop stars the Sugababes and Beverley Knight, the actor Colin Salmon and the Duchess of York.
As he grew up, Mr De Gale became a spokesman for the organisation and appeared frequently on television to talk about his ordeal.
Recently the African Caribbean Leukaemia Trust reported that the number of black people on the UK Bone Marrow Register had risen by nearly 300%, from 550 in 1995 to 15,500.
Mr De Gale's own battle against cancer was long and difficult, undergoing chemotherapy and suffering two relapses between 1993 and 1999. He was eventually able to beat the disease when a suitable donor was found in America. After a successful bone marrow transplant, he resumed a normal life and completed his education.
He died from an illness unrelated to cancer.
The charity released a statement in tribute to him and said the charity’s work would continue: “This beautiful boy inspired so many of us and we will continue to illuminate the path, with his light, so others may be guided to safety. In this life there are those sent to us to manifest wisdom, action and bring joy; Daniel was one of those spirits.
“The pain we are all feeling right now reflects the love he generated in so many of us. Not a love of celebrity or fame, but a love of life and ultimately this gift of life we have all been given. Beautiful Daniel De Gale, it has been an honour and the purest of pleasures to know you and call you a friend. Peace.”
The African Caribbean Leukaemia Trust worked closely with another bone marrow charity, the Anthony Nolan Trust. Ann-Margaret Little said: "It's so distressing to learn of Daniel's death. He was an inspiration for our work in partnership with Beverley and Orin and the ACLT.
"Daniel helped motivate hundreds of individuals, particularly from minority populations, to join The Anthony Nolan Trust's bone marrow register. Many of these donors will go on to provide life-saving transplants for patients throughout the world."
It's not every day you get to save the life of a total stranger, but that is exactly what happened to a 43-year-old carpenter from the Fens.
Matthew Hall, from Three Holes, near Wisbech, made a bone marrow donation to save the life of leukaemia sufferer Oliver Rofix and now the pair have enjoyed an emotional meeting.
Mr Rofix from Woodbridge, Suffolk, was just 20 years old he was diagnosed with an extremely rare form of leukaemia that left him needing a bone marrow transplant for any chance of survival.
Out of the nine million people registered for donation with the Anthony Nolan Trust, there were just two tissue matches. One was in America. The other was Mr Hall.
Mr Rofix received the treatment he so desperately needed just three days after his 21st birthday and is now in remission. On Saturday, he finally came face to face with Mr Hall at Suffolk Yacht Harbour in Levington, near Ipswich,
“I was only the third known person in the world to be diagnosed with this form of leukaemia and the other two had died,” said Mr Rofix, now 24.
“To find someone out of nine million people, who also lived so close, was very lucky.
“It's great to finally meet Matthew. We had already swapped a few Christmas cards and sent e-mails to one another, but that was it. I'd never even seen a picture of him - I wanted to be completely in the dark.
“The Anthony Nolan Trust can arrange contact between a patient and donor - but only after two years. After that I had to make the first move.
“It was an important thing for me to do. I can't express my thanks enough because he really has saved my life.”
Mr Hall, 43, who joined the Anthony Nolan register in 1995, was called to a Harley Street clinic for a medical.
And becoming a donor is not quite as painful as people expect - 80pc of tests can now be done through a process similar to giving blood.
Mr Hall and his wife Karen joined the register in 1995 after an appeal for a woman who worked in their local take-away. Sadly no match was found for her and she died, leaving a young family.
“When I knew I could actually help someone, there was no way I was going to say no. I was only in hospital for three days and two nights. I was treated extremely well,” said Mr Hall.
“There was a little bit of pain, but it wasn't unbearable. I wouldn't hesitate to do it again. I'd have no worries. I'd encourage anyone to join up. It's incredibly easy to do.”
Next year, Mr Rofix will be sailing around Great Britain in a bid to raise awareness and support of the Anthony Nolan Trust, and also try and inspire others who have been seriously ill.
“It's very hard for people who come out of treatment to get their confidence back,” he said. “I want to show people that they can still go out there and do what they want to do.”
"My name is Oliver Rofix and I am lucky enough to have survived LEUKAEMIA. I wouldn't be here without my donor and the support of family, friends and the various organisations dedicated to defeating this terrible illness.
Now I want to give something back!
My Challenge
To raise awareness and more importantly, funds, for The Anthony Nolan Trust because without a donor I would not be here today.
I will also be acknowledging two other charities, which are CLIC Sargent and Teenage Cancer Trust. It is through these two charities that I have met some very close friends at events which they have held.
How am I going to do it ?
By sailing the boat (a Valiant 18) that I bought just before my transplant, (Jolly Olly), around the coastline of Britain in 2011. The voyage will take approx 16 weeks and I will be sailing round the top of Scotland. Stopping every night if possible at a harbour to raise awareness through local media of what I am doing; I am also hoping to meet other young people who have been affected by cancer.
My planned Departure Date is May 2nd 2011
I will also be undertaking a shorter voyage from Ipswich to Cowes and around the Isle of Wight in July/August 2010 and taking the boat to local fund raising events whilst sailing as much as I can to prepare the boat and myself for the round Britain voyage."Olly's Round Britain Challenge is supportingAnthony Nolan Trust
Oliver is also looking for sponsors for his voyage awareness to Anthony Nolan trust to beat leukaemia get in touch with olley Via his Facebook page or on Twitter. Follow Oliver on Twitter Follow Oliver on Facebook _______________________________________________________________
In memory of Daniel De Gale 1987 to 2008 aged just 21
His childhood cancer battle inspired bone marrow donation among Britain’s ethnic minorities
Daniel De Gale, who died one year ago on 8 October 2008 aged 21, was a former leukaemia patient who helped promote much-needed bone marrow donations from the black community.
The severe shortage of black donors when Daniel was diagnosed with the cancer at the age of six inspired his parents - Beverley De Gale and Orin Lewis - to found the African Caribbean Leukaemia Trust with the aim of increasing the number of people from ethnic minorities on the UK Bone Marrow Register.
Daniel David De Gale (14 March 1987 – 8 October 2008) inspired a major push to promote awareness of Leukaemia in the United Kingdom's black community when, as a child, his mother and stepfather launched a search for suitable bone marrow donors and a charity.more
Await for 3 YOU TUBE VIDEOS TO LOAD
The charity was successful in recruiting donors from the police force, fire brigade and at universities and colleges. Volunteers worked tirelessly to raise awareness of the need for donors and staged recruitment registration clinics across the UK, focussing on towns and cities with a large black population. They also supported families suffering because of leukaemia.
They were helped during the 1990s by celebrities such as black footballers John Barnes, Ian Wright and John Fashanu, pop stars the Sugababes and Beverley Knight, the actor Colin Salmon and the Duchess of York.
As he grew up, Mr De Gale became a spokesman for the organisation and appeared frequently on television to talk about his ordeal.
Recently the African Caribbean Leukaemia Trust reported that the number of black people on the UK Bone Marrow Register had risen by nearly 300%, from 550 in 1995 to 15,500.
Mr De Gale's own battle against cancer was long and difficult, undergoing chemotherapy and suffering two relapses between 1993 and 1999. He was eventually able to beat the disease when a suitable donor was found in America. After a successful bone marrow transplant, he resumed a normal life and completed his education.
He died from an illness unrelated to cancer.
The charity released a statement in tribute to him and said the charity’s work would continue: “This beautiful boy inspired so many of us and we will continue to illuminate the path, with his light, so others may be guided to safety. In this life there are those sent to us to manifest wisdom, action and bring joy; Daniel was one of those spirits.
“The pain we are all feeling right now reflects the love he generated in so many of us. Not a love of celebrity or fame, but a love of life and ultimately this gift of life we have all been given. Beautiful Daniel De Gale, it has been an honour and the purest of pleasures to know you and call you a friend. Peace.”
The African Caribbean Leukaemia Trust worked closely with another bone marrow charity, the Anthony Nolan Trust. Ann-Margaret Little said: "It's so distressing to learn of Daniel's death. He was an inspiration for our work in partnership with Beverley and Orin and the ACLT.
"Daniel helped motivate hundreds of individuals, particularly from minority populations, to join The Anthony Nolan Trust's bone marrow register. Many of these donors will go on to provide life-saving transplants for patients throughout the world."
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