CLIC SARGENT FOR CHILDREN WITH CANCER!

Respite facilities, what do you know about it?
 Some of you already know taking care of a loved one is a full time job, And it can be extremely demanding. This is where respite comes in, it allows you to relax and have a normal life, which can often be taken away when you have a seriously ill member in the family. following Mark Dean's telephone interview with Jo Bell , who has a teenager of 16, and suffering with a brain tumor.

Link to Mark Dean's interview with Jo Bell




Clic Sargent

Every day, 10 children and young people in the UK hear the shocking news they have cancer. Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Being diagnosed with cancer is a frightening experience and the emotional, practical and financial implications of treatment are intensely challenging for the whole family.

CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. Clic Sargent provide clinical, practical, financial and emotional support to help them cope with cancer and get the most out of life. We are there from diagnosis onwards and aim to help the whole family deal with the impact of cancer and its treatment, life after treatment and, in some cases, bereavement.

This section contains more information about CLIC Sargent, including their aims, mission and vision and why the views of children and young people 
with cancer are so important to them. 

Clic Sargent web link

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HPV cervical cancer vaccination programme

HPV cervical cancer vaccination programme

Email: hpv@northants.nhs.uk
Telephone: 01604 678052

Webpage Links:

• HPV Immunisation

HPV stands for human papillomavirus, which causes 99% of all cervical cancers. The vaccine stops the HPV developing in the body and prevents cervical cancer in 70% of cases.
It is estimated that the routine HPV vaccination for girls aged 12-13 could save the lives of up to 400 women each year.
Most HPV infections are harmless or cause genital warts, however some types cause cancer. Most HPV infections clear up by themselves, but in some people the infection can last a long time. HPV infects the cells of the surface of the cervix where it can stay for many years without you knowing. The HPV virus can damage these cells leading to changes in their appearance. Over time, these changes can develop into cervical cancer.

HPV vaccinations offer additional protection and do not replace cervical smear tests in later life. It is important that all women between 25 and 65 attend their cervical smear tests.

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If you have any issues you would like to discuss about the service you have received contact our Patient Advice and Liaison Service Team. If you wish to make a complaint please contact the Complaints Service.
 

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Life Saver Matthew meets the leukaemia stranger (Oliver) whose life he saved.

Thank you: Survivor Mr Rofix, left, meets 

bone marrow donor Mr Hall for the first time

It's not every day you get to save the life of a total stranger, but that is exactly what happened to a 43-year-old carpenter from the Fens.

Matthew Hall, from Three Holes, near Wisbech, made a bone marrow donation to save the life of leukaemia sufferer Oliver Rofix and now the pair have enjoyed an emotional meeting.

Mr Rofix from Woodbridge, Suffolk, was just 20 years old he was diagnosed with an extremely rare form of leukaemia that left him needing a bone marrow transplant for any chance of survival.

Out of the nine million people registered for donation with the Anthony Nolan Trust, there were just two tissue matches. One was in America. The other was Mr Hall.

Mr Rofix received the treatment he so desperately needed just three days after his 21st birthday and is now in remission. On Saturday, he finally came face to face with Mr Hall at Suffolk Yacht Harbour in Levington, near Ipswich,

“I was only the third known person in the world to be diagnosed with this form of leukaemia and the other two had died,” said Mr Rofix, now 24.

“To find someone out of nine million people, who also lived so close, was very lucky.

“It's great to finally meet Matthew. We had already swapped a few Christmas cards and sent e-mails to one another, but that was it. I'd never even seen a picture of him - I wanted to be completely in the dark.

“The Anthony Nolan Trust can arrange contact between a patient and donor - but only after two years. After that I had to make the first move.

“It was an important thing for me to do. I can't express my thanks enough because he really has saved my life.”

Mr Hall, 43, who joined the Anthony Nolan register in 1995, was called to a Harley Street clinic for a medical.

And becoming a donor is not quite as painful as people expect - 80pc of tests can now be done through a process similar to giving blood.

Mr Hall and his wife Karen joined the register in 1995 after an appeal for a woman who worked in their local take-away. Sadly no match was found for her and she died, leaving a young family.

“When I knew I could actually help someone, there was no way I was going to say no. I was only in hospital for three days and two nights. I was treated extremely well,” said Mr Hall.

“There was a little bit of pain, but it wasn't unbearable. I wouldn't hesitate to do it again. I'd have no worries. I'd encourage anyone to join up. It's incredibly easy to do.”

Next year, Mr Rofix will be sailing around Great Britain in a bid to raise awareness and support of the Anthony Nolan Trust, and also try and inspire others who have been seriously ill.

“It's very hard for people who come out of treatment to get their confidence back,” he said. “I want to show people that they can still go out there and do what they want to do.”

Oliver's Travels

quote taken from

Oliver's own website

http://www.olivers-travels.co.uk/index.php

"My name is Oliver Rofix and I am lucky enough to have survived LEUKAEMIA. I wouldn't be here without my donor and the support of family, friends and the various organisations dedicated to defeating this terrible illness.

Now I want to give something back!


My Challenge

To raise awareness and more importantly, funds, for  The Anthony Nolan Trust because without a donor I would not be here today.

I will also be acknowledging two other charities, which are  CLIC Sargent and  Teenage Cancer Trust. It is through these two charities that I have met some very close friends at events which they have held.


How am I going to do it ?

By sailing the boat (a Valiant 18) that I bought just before my transplant, (Jolly Olly), around the coastline of Britain in 2011. The voyage will take approx 16 weeks and I will be sailing round the top of Scotland. Stopping every night if possible at a harbour to raise awareness through local media of what I am doing; I am also hoping to meet other young people who have been affected by cancer.


My planned Departure Date is May 2nd 2011

I will also be undertaking a shorter voyage from  Ipswich to Cowes and around the Isle of Wight in July/August 2010 and taking the boat to local fund raising events whilst sailing as much as I can to prepare the boat and myself for the round Britain voyage."Olly's Round Britain Challenge is supporting Anthony Nolan Trust

Oliver is also looking for sponsors for his voyage awareness to Anthony Nolan trust to beat leukaemia
get in touch with olley Via his Facebook page or on Twitter.
  Follow Oliver on Twitter
  Follow Oliver on Facebook
_______________________________________________________________

Related items

•  The cancer that can be confused with flu or a hangover
•  Bone marrow boy is now ‘little stuntman’

They say

•  Leukaemia: Matt is a life-saver BBC
•  Life-saving donor ITV.com
•  Donor's thank you ITV.com
•  Rihanna 'heartbroken' IAfrica.com
•  Jeremy’s cancer in remission Citizen.co.za

 See also Jerry's other blogs on "Cancer"

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More on health and well being

Thanks to all news reporters and agencies for making this blog possible. Jerry Wright

If you feel you would like to make a comment on any blog, just click the envelope icon, thanks Jezza

H.P.V. VACCINE AND TEENAGE GIRLS

A group of teenage girls and a GP describe how

the HPV vaccine can reduce the risk of cervical cancer

 

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"Health and Well Being"

Cervical screening debate

Worried about cancer?

The age limit for cervical screenings will not be lowered - Plus get advice on cervical cancer

Useful Links:

• Cancer Research UK - Cervical cancer
• Macmillan Cancer Support
• Cancer back up
• Cervical cancer screening programme

The links above are to third parties' websites, the contents of which are not the responsibility of GMTV.

The age at which women are called for cervical cancer screening will not be lowered to 20 in England, the Government announced today.

The decision comes following calls for younger women to be screened in light of the death of Big Brother star Jade Goody in March.

Women will continue to be invited for screening from the age of 25 in England.

In Scotland, Wales and Northern Ireland, women attend screening from the age of 20.

A review of the issue was carried out by the independent Advisory Committee on Cervical Screening (ACCS).

The panel agreed unanimously for no change in the screening age because evidence showed earlier screenings could do "more harm than good", causing too many false positives and increasing the risk of premature births among some women.

In England in 2006, a total of 56 women under the age of 25 were diagnosed with cervical cancer, meaning it is there.

Health Minister Ann Keen said she fully supported the conclusion reached by the ACCS.

"They have concluded that the screening age should not be lowered but have recommended that we do more work around the treatment of symptomatic patients," she added.

Meanwhile, Jade Goody's widower Jack Tweed said today it was a "great shame" the Government had rejected calls to lower the screening age for cervical cancer.

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Cervical Cancer Vaccine For Year 8 Girls

The new vaccine to protect girls and young women against the most common cause of cervical cancers.

In September 2008 the first vaccinations of school girls in year eight began in England.

The first full course of three injections have now been completed in England .

Each September year 8 girls will start their programme.

programme costing up to £100 million a year.

There will also be a two-year "catch-up" campaign starting in autumn 2009 for girls aged up to 18, costing up to £200 million a year.

Related links http://www.nhs.uk/Pathways/cervicalcancer/Pages/Landing.aspx

http://www.nhs.uk/Conditions/Cancer-of-the-cervix/Pages/Introduction.aspx

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Due to re-launch in the summer of 2010

The programme days and times mentioned on all blogs are subject to confirmation and change.These updates are to give you an idea of the variety of talent on a community radio station, which is funded by the community .

( unlike the big commercial radio stations )

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